Job Description

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Support Coordinator

Do you have experience of working in a Health and Social Care role Are you passionate about the welfare of families affected by a life altering illness or disability

We are looking for two new team members to join the team of Specialist Huntington's Disease Advisers to support people affected by Huntington s disease.

This is a remote working, part-time role, offering flexible working hours.

Position: Support Coordinator (internally known as Specialist Huntington's Disease Adviser)

Location: Remote (covering West Yorkshire and the West of North Yorkshire OR East Yorkshire, East of North Yorkshire and Lincolnshire)

Hours: Part-time, 28 hours per week x2 roles covering East or West Yorkshire, flexible hours (you must be available to work on Tuesdays. All other working days are flexible)

Salary: £37,471.91 pro rata (actual part-time salary £29,977.53)

Contract: Permanent

Closing Date: 5pm, Monday 2nd November 2026

First round interviews will be held online Thursday 19th - Friday 20th November. Second round interviews will be held in-person in our Central Office (Liverpool) on Friday 4th December.

The Role

This is an exciting and rewarding opportunity to offer help, information, advice, support and education to everyone affected by Huntington s disease and professionals involved in supporting them. Huntington's disease is a life-limiting, genetic disorder that causes the breakdown of nerve cells in the brain. The service offers support by telephone, and other virtual methods, some direct (home) visits and through working closely with specialist Huntington s clinics.

Key responsibilities include:

• Identify needs through working in partnership with the individual and/or carer/s
• Identify and act appropriately where issues of risk, including safeguarding arise, and refer to the relevant leads and agencies where appropriate.
• Advocate for care and support to ensure the best possible service is provided by the appropriate agencies.
• Monitor the quality and effectiveness of service provision and advocate where necessary.
• Deliver training and information for professionals, ensuring that they have a comprehensive understanding of the needs of people affected by Huntington s disease.
• Organise and facilitate educational and peer opportunities for families and professionals.
• Promote and raise awareness of Huntington s disease and the Association.
• Establish new peer support opportunities where a need is identified and to promote the online support services facilitated by the Association.
• Liaise with and maintain relationships with other neurological organisations.

This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation. Please note both roles available are home-based, though applicants must be living within a commutable distance of the area specified.

About You

We are looking for someone with experience of working with adults and/or children with disabilities and of working with multi-Disciplinary agencies. This can be within an Health and Social Care setting.

You will have:

• Knowledge of the effects of a long-term disability on individuals and families/carers.
• Effective written and verbal communication skills including the ability to translate complex issues into clear, focused and understandable advice.
• Strong IT skills to keep accurate and up to date admin/records in line with policy and current data standards.
• Ability to work remotely in a way that promotes the safety and wellbeing of adults at risk, children and young people.
• Ability to manage and organise own workload.
• Ability to present training sessions to families and professionals.

To ensure your application is considered, please upload both your CV and a cover letter. Your cover letter should include why you are applying for the role and how you meet the requirements of the person specification. Please note that this role requires travel covering West Yorkshire and the West of North Yorkshire OR East Yorkshire, East of North Yorkshire and Lincolnshire. You must have access to a vehicle for work purposes and hold the right to work in the UK.

About the Organisation

The charity was founded in 1971 and provides specialist support to people affected by Huntington s disease across England and Wales. The focus is to raise awareness of Huntington s disease and offer practical advice and support, training to health and social care professionals and fund research into the disease to achieve a better life for anyone affected by Huntington's disease.

Benefits include:

• 25 days annual leave plus public holidays (pro rata for part-time staff)
• 1 additional days leave for your wellbeing or to mark cultural occasions
• A pension scheme with 3% employer contribution
• Medicash scheme
• Flexible working approach and TOIL policy (access to time off in lieu of additional hours worked)
• Collaborative, supportive and positive working environment and fantastic learning and development opportunities

The successful candidate will need to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity. All applicants must be able to demonstrate the right to work in the UK and are subject to a three-month probationary period.

This post is exempt from the provisions of Section 4(2) of the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975. You are therefore not entitled to withhold information about convictions which for any other purposes are spent under the provisions of the Act.

You may also have experience in areas such as Care Worker, Care Support Worker, Health Worker, Social Care Worker, Carer, Support Worker, Support Outreach Worker, Health Coordinator, Care Coordinator, Hospital Liaison, Care Support Administrator.

Please note this role is advertised by the recruitment agency acting for the client, Not For Profit People.